Finding healthcare that works for hypermobile humans is hard.
You don’t have to do it alone.
PhD research scientist, patient, advocate
I live with hypermobility myself. My work sits at the intersection of research literacy, self-advocacy, and figuring out what actually helps — because the evidence base is disorganized and hidden behind paywalls and because the medical system is painful to navigate.
My Approach
Connections
If you’ve been struggling with hypermobility for years, chances are you have more medical knowledge about this than most of the medical professionals. You need a partner who can keep up with the most recent advances and deliver new, evidence-based ideas - instead of platitudes and Tylenol.
Hypermobility is a combination of altered connective tissue and an altered immune system. Figuring out what that means for you as a patient is difficult, especially when your doctors aren’t educated on the disease. I can connect you with high quality resources to understand the underlying connection between your symptoms.
Advocacy
There’s a lot of information online about hypermobility, but the market is crowded with ineffective and misleading advice. As a scientific researcher and data nerd, I can fill the gap between the latest research and your daily symptoms to identify new ideas for treatments and symptom management. You’ll get customized coaching designed to empower you to engage with your healthcare team and get you feeling better.
-
![White computer cursor icon inside a circular scalloped border on a black background.]()
Understand the Science
PhD research scientist reviews the latest findings with you
-
![Black background with a white outlined heart in the center, surrounded by a wavy white border.]()
Understand Your Body
We succeed by learning “why?”, not by oversimplifying
-
![Icon of three people inside a seal or badge.]()
Understand Your Life
You deserve answers, not labels
I’m Hypermobile, Now What?
I need help with...
Navigating daily life with these dynamic symptoms
Some days I’m functional, some days I’m not. I need strategies for both.
Life with chronic illness can be exhausting, but the right supports make it easier. You’ve probably tried everything and you’re ready to think outside the box. Let’s brainstorm together.
I can provide guidance for topics like:
revamping your routines with accessibility hacks,
setting up a weekly rhythm that gives breathing room for high- and low-symptom days
and requesting accommodations at work
Talking to (or coordinating) my care team
My doctors want my case to be simple, but I know there’s more to it.
If you have symptoms that dominate your life or if you feel like your doctors are simply going through a checklist built for “normal” patients, you deserve more than a rushed appointment.
A comprehensive review of your medical history can fill in gaps across specialists and spot connections you’ve missed. together, we can build a clear narrative of your body - one that gets current and future doctors up to speed fast, so you spend your appointment time on what actually matters.
Let’s navigate this journey together.
Understanding the research
The research exists, but it’s hard to connect to my life.
For example, the American Gastroenterological Association recently published guidelines for doctors to follow when diagnosing hypermobile patients with GI symptoms. Many GI doctors are so busy with the demands of running a clinical practice, they haven’t had time to review and implement these guidelines for their own patients.
I can walk you through the relevant research articles and clinician guidelines so that you can advocate for yourself and the care you need.
I work with people with hypermobility in all its forms - hypermobile Ehlers-Danlos Syndrome (hEDS), hypermobility spectrum disorder (HSD), and the conditions that can come along with them, like POTS, dysautonomia, and MCAS. I coach clients on how to adapt daily living to unpredictable symptoms, make the most of medical appointments, and understand the research.
Let’s discuss!
Reserve a free consultation to discuss your experience with hypermobility and what support might look like for you.