Finding healthcare that works for hypermobile humans is hard.
You don’t have to do it alone.
PhD research scientist, patient, advocate
I live with hypermobility myself. My work sits at the intersection of research literacy, self-advocacy, and figuring out what actually helps — because the evidence base is disorganized and hidden behind paywalls and because the medical system is painful to navigate.
My Approach
Connections
If you’ve been struggling with hypermobility for years, chances are you have more medical knowledge about this than most of the medical professionals. You need a partner who can keep up with the most recent advances and deliver new, evidence-based ideas - instead of platitudes and Tylenol.
Hypermobility is a combination of altered connective tissue and an altered immune system. Figuring out what that means for you as a patient is difficult, especially when your doctors aren’t educated on the disease. I can connect you with high quality resources to understand the underlying connection between your symptoms.
Advocacy
There’s a lot of information online about hypermobility, but the market is crowded with ineffective and misleading advice. As a scientific researcher and data nerd, I can fill the gap between the latest research and your daily symptoms to identify new ideas for treatments and symptom management. You’ll get customized coaching designed to empower you to engage with your healthcare team and get you feeling better.
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Understand the Science
PhD research scientist reviews the latest findings with you
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Understand Your Body
We succeed by learning “why?”, not by oversimplifying
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Understand Your Life
You deserve answers, not labels
I’m Hypermobile, Now What?
How do I integrate this information into my current and future healthcare?
Hindsight is 20/20! A comprehensive review of your past and current medical history can help fill in gaps across specialists and bring new information to light.
Creating a united, flowing narrative that tells the story of your body helps get current and future doctors or specialists up to speed quickly, so you can spend your appointment time discussing what matters most.
Let’s navigate this journey together.
My doctors want my case to be simple, but I know there’s more to it.
If you have lingering symptoms or feel like your doctors are simply going through a checklist built for “normal” patients, let’s dive into the scientific research for a second opinion.
For example, the American Gastrological Association recently published guidelines for doctors to follow when diagnosing hypermobile patients with GI symptoms. Many GI doctors are so busy with the demands of running a clinical practice, they haven’t had time to review and implement these for their own patients. Let’s put together a summary of the relevant research articles and suggested treatment plan so that you can advocate for yourself and get the care you need!
I’ve tried everything. I need to think outside the box.
Life with chronic illness can be exhausting, but the right supports make it easier. Let’s brainstorm together. I can provide guidance for topics like:
Requesting accommodations at work.
Revamping your routines with some accessibility hacks
Setting up a weekly rhythm that gives breathing room for high- and low-symptom days
Let’s discuss!
Reserve a free consultation to discuss your experience with hypermobility and what support might look like for you.
FAQ
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After a free consultation to discuss your priorities, we’ll go through a comprehensive questionnaire to identify all areas where hypermobility might be showing up in your life. We’ll review that together to make a plan for how I can best support you!
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Pricing is based on the time spent in direct coaching as well as researching and providing relevant resources for your case.
I’ll propose a package of hours based on the scope of your request and your timeline. With your input, we’ll decide on a schedule for meeting and what resources you’ll need - and you’ll sign off on everything before I begin!